PEPFAR-Blog

On 20 January 2025 the United States announced a 90-day freeze on US foreign aid which has had a devastating impact on people living with and affected by HIV, on the people and organizations supporting them and on the global response to HIV as a whole.  

Community organizations have been particularly impacted by the freeze in funding. Community healthcare workers are losing their jobs, clinics are having to be shut down and, as a result, people in need of HIV testing or prevention or who are living with HIV and dependent on daily antiretroviral medicine are unable to access the life-saving HIV services they need. 

On 10 February, UNAIDS convened an emergency meeting with community organizations to monitor the impact of the unfolding crisis. Community groups reported that HIV services around the world are facing serious challenges. Some are grinding to a halt. Supplies of antiretroviral medication, pre-exposure prophylaxis (PrEP), post-exposure prophylaxis (PEP) and condoms have been disrupted, leaving many without essential tools of HIV treatment and prevention.  

HIV testing kits are increasingly scarce and outreach services – essential for connecting people in need of HIV testing – are being suspended. As a result, HIV and sexually transmitted infection testing are disrupted, threatening detection and prevention efforts. 

“The damage is immediate and severe,” said one advocate. “People who rely on [U.S.-funded] programmes for [safety and] survival are suddenly left with nothing.”  

The US pause in administering foreign assistance while it reviews recipients is not just a bureaucratic delay; it is a direct threat to continued progress against AIDS and will quickly erode decades of hard-won gains in the global HIV response. It will destroy many community organizations without which the world cannot close the gaps in HIV testing, prevention and treatment. 

The US Government has invested more than US$ 100 billion to date in the global fight against AIDS with the US accounting for around 73% of donor funding for HIV worldwide; millions of people at risk for and living with HIV rely on US funded clinics to stay healthy in the face of HIV.

Community-led data reveals community organizations are bearing the brunt of the pause 

A survey conducted by the Uganda Key Populations Consortium found that 97% of respondents reported negative effects on their HIV service due to the freeze on US foreign assistance. A staggering 43% of organizations supporting key populations surveyed said they relied on US funding for at least 76% of their budgets. 

Another joint survey by Aidsfonds, the Global Network of People Living with HIV (GNP+), and the Robert Carr Fund found similarly worrying results. Of 564 organizations surveyed across 25 countries, 95% reported direct impacts from the US funding freeze. 43% of programmes have paused implementation, while 35% have fully suspended operations. 

“The results are alarming,” said Mark Vermeulen, Director of Aidsfonds. “More than half (57%) of the organizations estimate that this crisis will impact more than a million people. The longer these disruptions persist, the greater the risk of a new generation of preventable HIV infections. This threatens to undo the hard-earned progress in reducing new infections among children.” (New HIV infections among children had been reduced by 62% from 2010 to 2023, largely thanks to investment and commitment from the US Government). 

It’s not just people living with or at risk for HIV that face an existential threat 

The financial void left by the US aid freeze of its foreign assistance is forcing community groups to fire employees and/or to close up shop entirely. Many community organizations do not have sufficient funding reserves to stay afloat through the 90-day (or perhaps longer) period of no US funding. 

“The leadership of national networks of people living with HIV have been forced to let go of community cadre staff- peer educators, adherence counselors, community health facilitators, and mentor mothers,” said Florence Anam, Co-executive Director of GNP+.   

GNP+ recently convened with leaders from national and regional networks of people living with HIV and released a statement with the main concerns. 

“These organizations are not a luxury – they are critical for ending AIDS,” said Christine Stegling, Deputy Executive Director, UNAIDS. “Serving as advocates, peer educators, care providers and watchdogs, community-led organizations ensure that lifesaving HIV testing, prevention and treatment reaches those most in need.”  

Many organizations have spent years garnering the trust of the communities they serve. If these organizations disappear, even if others replace them one day, it will take years to reestablish the bonds of trust that allow them to be so instrumental in encouraging people to seek HIV care.  

In a joint survey by Aidsfonds, GNP+ and the Robert Carr Fund 22% of organizations reported increased experiences of discrimination, including reports of discrimination within healthcare settings, where people faced barriers to accessing care. 

LGBTQ+ communities in need of HIV testing, prevention and treatment fear increased risks of violence and discrimination as funding for protective services – led by HIV community groups –  disappear. 

Since the earliest days of the AIDS pandemic, communities and community-led services have been instrumental in ensuring equitable, accessible HIV testing, prevention and treatment – as well as the supportive services that make all three possible. 

Communities have been at the forefront, driving the delivery of comprehensive care, life-saving treatment and offering regular monitoring and prevention services and psychosocial support. Their unwavering dedication has not only saved millions of lives but also reshaped the trajectory of the AIDS pandemic. Their leadership and work on HIV are a model for all other responses to communicable diseases.  

By paralyzing frontline response efforts led by community groups, the US decision to freeze funding is weakening health systems across the Global South. The freeze not only jeopardizes precious gains made to date against HIV – it also threatens to usher in a new wave of entirely preventable HIV infections and AIDS-related deaths. 

The community groups stressed that this crisis extends beyond HIV treatment. The funding cuts impact efforts to provide clean water, basic education and to prevent human trafficking of girls. The loss of funding is dismantling the fragile safety net that has been built over decades around the world 

“We are deeply concerned about the sustainability of the HIV response, particularly support for key populations, HIV prevention, human rights and community led responses. We are re-orienting our own efforts to support the communities and organizations that are both bearing the brunt of the loss of funding and facing targeted attacks on their rights and their very lives,” said John Plastow, Executive Director of Frontline AIDS, a global partnership, headquartered in the UK and South Africa, that works with 60 partners across 100 countries around the world.  Over 20 of their partners have said they are affected by the US foreign aid freeze. 

Since the US funding freeze on foreign assistance was announced, UNAIDS has conducted daily assessments led by its regional and country teams to track disruptions and to relay urgent needs to donors and to governments of affected countries. At country and regional levels, UNAIDS has also been convening people living with HIV and other affected communities to assess the impact and discuss mitigation measures. For the latest updates: Impact of recent U.S. shifts on the global HIV response - The global impact of PEPFAR to date | UNAIDS  

UNAIDS stands in solidarity with community leaders calling on the US, other donors and governments of affected countries to step in before irreversible damage is done. UNAIDS and communities call on the US to maintain its global leadership on, and unparalleled support for the global response to AIDS. Without immediate intervention, decades of progress in the global HIV response will be undone, leaving the world on the precipice of a public health disaster that we have the power and tools to avert.