Since the United Nations High-Level Meeting on Ending AIDS in 2016, the young key populations’ movement and its visibility have grown considerably in Asia and the Pacific. Through their engagement with national and regional networks of key populations, more and more young people have taken up space in decision-making processes and in mobilizing resources to support local and national organizations. However, despite those important efforts, more needs to be done to meaningfully engage young key populations in the HIV response as leaders, beneficiaries and partners.

UNAIDS data from 2019 alarmingly shows that 27% of all new HIV infections in Asia and the Pacific were among young people. Young gay men and other men who have sex with men accounted for 52% of all new HIV infections among young people. Overall, 99% of new HIV infections among young people were among young key populations and their partners.

A side event held on the sidelines of the United Nations High-Level Meeting on AIDS, held in New York, United States of America, and online from 8 to 10 June, looked at the progress made and challenges in the HIV response and emphasized the critical role of young people in leading change and promoting successful and innovative approaches to the HIV response.

The speakers and panellists stressed that significant barriers exist for young key populations to access HIV testing, treatment and prevention services and routine sexual and reproductive health and rights services in the region. Those barriers include a limited availability of differentiated HIV services for young key populations, stigma and discrimination, punitive laws and other legal barriers that leave young key populations on the margins and out of reach of HIV services.  The COVID-19 pandemic continues to widen existing inequalities and service gaps, but thanks to the engagement of community-led organizations, populations at higher risk of HIV, including young key populations, were able to access essential HIV and health services.

The speakers and panellists noted that young people are showing us the way to revolutionize HIV prevention and increase the uptake of HIV services by implementing new strategies and innovations that cater to the specific needs of young people. During the COVID-19 pandemic, organizations led by and serving young people, such as the Lighthouse Social Enterprise in Viet Nam and the Human Touch Foundation in India, have been at the forefront of the HIV response, providing HIV services in partnership with the local government to the communities that need them the most.

The team at the Human Touch Foundation, a community-based organization in Goa, India, that provides care and support to adolescents living with HIV has, since the start of the COVID-19 pandemic, organized volunteers to deliver antiretroviral therapy to people’s doorsteps. Moreover, the organization played a critical role in getting the local government to waver public transport costs to ensure that people living with HIV had access to treatment. With the increased anxiety and depression brought on by the COVID-19 pandemic, the Human Touch Foundation offered psychosocial support services to adolescents living with HIV, both in the form of online counselling and in-person consultations.

Similarly, the Lighthouse Social Enterprise, a lesbian, gay, bisexual, transgender and intersex (LGBTI) organization led by young people based in Hanoi, Viet Nam, has been instrumental in providing differentiated service delivery to young key populations during the COVID-19 pandemic. Some of the services it provides at its clinic include HIV counselling and testing, post-exposure prophylaxis, pre-exposure prophylaxis and antiretroviral therapy. The Lighthouse Social Enterprise also established a referral service to ensure that young key populations are linked with other health services, such as sexually transmitted infection testing and treatment, mental health support and harm reduction services. What makes the Lighthouse Social Enterprise unique is that the clinic is entirely run by young people. Health-care workers are given training by the Lighthouse Social Enterprise team on LGBTI and key population needs and issues in order to ensure that services are youth-friendly and free from stigma and discrimination. Last year, the Lighthouse Social Enterprise provided services to more than 3000 members of young key populations in Viet Nam.

The side event was an opportunity for different organizations led by and serving young people working on HIV-related issues to share experiences and define common strategies to keep HIV on the political agenda at the national and municipal levels.

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Despite the great progress made since the early days of the HIV epidemic, the HIV response for children is still lagging behind the response for adults.

Children living with HIV are particularly susceptible to tuberculosis (TB), one of the leading causes of AIDS-related deaths. In 2020, according to government statistics, 9400 people died of AIDS-related illnesses in Côte d’Ivoire, including 800 children under the age of 14 years. There were 21 000 people under the age of 15 years living with HIV in the country—only 49% had access to antiretroviral therapy. How to correct such an inequality was the question at the heart of a national consultation on paediatric HIV and TB that was held from 8 to 10 June in Abidjan, Côte d'Ivoire.

The consultation, Acting Together for a Generation without AIDS and Tuberculosis, was aimed at improving the prevention and management of HIV and TB among children and adolescents in Côte d’Ivoire.

In her opening speech, Dominique Ouattara, the First Lady of Côte d’Ivoire, called for “The development of an ambitious road map that will enable Côte d'Ivoire to achieve its commitments.” She invited all the participants to engage in a dialogue on the challenges and priority actions needed, and to discuss the roles, responsibilities and contributions of each partner.

The consultation is part of the Confessional Initiative, a UNAIDS and United States President’s Emergency Plan for AIDS Relief initiative that is organizing national consultations and training in Cameroon, Côte d’Ivoire, Kenya, Nigeria and the United Republic of Tanzania.

“The consultation presented the national situation regarding diagnosis, treatment and prevention of HIV and tuberculosis among children, identified the key challenges, outlined the solutions, priority actions and resources needed to improve the national roll-out of optimal paediatric HIV and tuberculosis treatment and diagnosis and identified good practices for replication through civil society and faith-based organizations,” said Patrick Brenny, the Director for the UNAIDS Regional Support Team for Western and Central Africa.

The targets in the 2016 United Nations Political Declaration on Ending AIDS and in Start Free, Stay Free, AIDS Free for paediatric AIDS have not been met. Globally, during 2020 an estimated 160 000 children acquired HIV, far from the global 2020 target of 20 000. Modelling has also shown that the COVID-19 pandemic could have a major impact on new HIV infections among children in sub-Saharan Africa.

Ms Ouattara appealed to the 350 participants to work towards reducing inequalities and asked all stakeholders to join forces to achieve certification of the elimination of mother-to-child transmission of HIV. “Today, in 2021, no child should die of AIDS or tuberculosis in our country," she added.

Costa Rica has joined the Global Partnership for Action to Eliminate all Forms of HIV-Related Stigma and Discrimination. At a United Nations High-Level Meeting on AIDS side event on 7 June, the Vice President of Costa Rica, Epsy Campbell Barr, emphasized the country’s commitment to human rights by highlighting that a comprehensive and effective HIV response needs to include the human rights of people living with HIV.

Costa Rica is the third signatory to the global partnership in the Latin America and Caribbean region, joining Jamaica and Argentina.

The side event, Latin America and the Caribbean on the Road to Eliminating HIV-Related Stigma and Discrimination, was co-organized by the regional coordinator of the global partnership, RedTraSex (the Sex Workers Network for Latin America and the Caribbean), the Global Network of People Living with HIV and the Governments of Jamaica and Costa Rica, with the support of UNAIDS.

Five year ago, the 2016 United Nations Political Declaration on Ending AIDS recognized the HIV epidemic as a human rights challenge. Member States expressed concern about HIV-related stigma and discrimination around the world and about the regulatory and legal frameworks that discourage and prevent people from accessing HIV-related services.

The Global Partnership for Action to Eliminate all Forms of HIV-Related Stigma and Discrimination was created in 2017. The initiative has the goal of catalysing and accelerating the implementation of commitments made to end HIV-related stigma and discrimination by United Nations Member States, United Nations agencies, bilateral and international donors, nongovernmental organizations and communities.

Countries have made commitments on ending discrimination in various international conventions, and have made further promises at the regional and national levels. The global partnership supports countries in transforming those promises into reality through policies, programmes and practices that strengthen health and HIV-related rights.

Through the regional coordination of RedTraSex, the global partnership supports an open and ongoing dialogue in the regional civil society networks with the goal of strengthening national coordination platforms and representation, with a focus on people living with, at risk of or affected by HIV.

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A side event at the United Nations High-Level Meeting on AIDS, being held in New York and online from 8 to 10 June, has highlighted the science relevant to the new UNAIDS global strategy and targets and the changing scientific environment that will take the world to 2030, the Sustainable Development Goal target date for ending AIDS.

At the event, Science, HIV and COVID-19—Where are we Headed?, Jon Cohen, a leading science journalist, moderated a panel discussion that included Anthony Fauci, the Chief Medical Adviser to the President of the United States of America, Loyce Maturu, an activist working for Zvandiri in Zimbabwe, Soumya Swaminathan, the Chief Scientist at the World Health Organization, and other leading HIV scientists.

In the complexity and multidimensional nature of the global AIDS response, science has been a constant force, moulding and adapting how the world reacted. A similar role for science has been seen in the other ongoing pandemic—COVID-19. The side event was an opportunity to discuss the role of science and to review major and emerging scientific themes that will influence the trajectory of the HIV pandemic in the approach to 2030.

Mr Fauci emphasized the importance of long-term engagement and investment in surveillance and basic sciences to increase preparedness for future pandemics, noting that we must focus on building trust in science and explaining how knowledge evolves through the accumulation of reliable data that can alter clinical and public health guidance. The COVID-19 pandemic has taught us lessons in efficiency and in accelerating the translation of basic science into effective interventions, he said. However, we must address the challenges of access, intervention pricing and social biases that limit our global impact. He concluded that both the HIV pandemic and the COVID-19 pandemic have the power to strengthen the global community, and he committed the United States to being a global leader and reliable partner in those efforts.

Greg Millett celebrated the amazing fall in new HIV infections in several places, such as London, Denmark and Australia, where pre-exposure prophylaxis (PrEP) and effective testing and treatment is really working for gay men and other men who have sex with men.  He highlighted the importance of recent scientific advances that have led to new technologies, such as HIV self-tests and new PrEP modalities.

A major theme was around equity. For both COVID-19 and HIV, the participants noted that we must ensure that all people in all countries reap the benefits of science. Commentators in the audience reiterated that this is even more important given the participation of so many people across so many countries as the altruistic participants in the research that has led to the exciting new tools for HIV prevention and vaccines for COVID-19. And Mr Millet pointed out that we are all interrelated and interconnected. HIV infections and other diseases are, of course, in no way limited to national boundaries.

Loyce Maturu reminded everyone that young people are central to the HIV response. Young people are often left behind and treated as end users of services that are not specifically designed to suit their lifestyles. She acknowledged that science was the reason that she was with us, healthy, beautiful and empowered after falling sick with HIV-related illnesses as a child and witnessing the death of both her mother and brother from HIV. Young people need to be central to science and brought to the tables that set the research priorities.

Quarraisha Abdool Karim, and others, exhorted political leaders not to “drop the ball” for HIV. We need to finish the job and not allow the huge challenges of dealing with it deflect us.

All the participants pushed for HIV programmes to be based firmly on scientific evidence, and Wafaa El Sadr noted that the evidence base comes not only from biomedical laboratories and large clinical trials, but also from implementation and the social sciences. The Co-Chairs of the upcoming International AIDS Society Science Conference, in July 2021, Adeeba Kamarulzaman and Hendrik Streeck, hoped that the high-level meeting would be a boost for stronger engagement with science—registrations for the conference are as high as ever, despite the COVID-19 restrictions. Mr Streeck called for a massive effort to bring thousands of HIV vaccine scientists together in one huge effort, similar to the collaboration around the Large Hadron Collider or even the Manhattan Project.

In an optimistic conclusion, Ms Swaminathan hoped that the proven success of the scientific collaboration that has produced multiple COVID-19 vaccines so quickly should be a stimulus for greater enthusiasm and investment in collaborations to end not just AIDS but also other major public health challenges, such as tuberculosis, malaria and noncommunicable diseases.

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Around 300 faith leaders and representatives of faith-based organizations met on 7 June in an online event, Faith2EndAIDS, Faith2EndInequality, on the sidelines of the United Nations High-Level Meeting on Ending AIDS.

Sharing lessons learned by faith-based organizations and faith communities in addressing stigma and discrimination, promoting human rights and increasing access to HIV services, the participants also explored the main areas of action in the political declaration on AIDS and the particular role of faith responses in implementing the commitments.

Practical examples were shared of faith-motivated programmes that increase access for people affected by inequalities, such as programmes for migrants and children. The participants emphasized the critical role that faith responses can play in mitigating stigma.

A key focus going forward is the 12 Million Campaign, where faith leaders, individuals and communities of faith commit to key actions that could promote access to HIV services by the 12 million people who are living with HIV who still do not have quality and consistent HIV treatment, care and support.

The active discussions in the chat box reflected the enthusiasm and commitment of faith communities and people of faith to play a meaningful role in ending AIDS and ending the inequalities that drive the pandemic.

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Many factors in society, including poverty, stigma, discrimination and persistent gender and socioeconomic inequalities, influence the health of individuals and communities, the participants heard at a side event at the United Nations High-Level Meeting on AIDS, being held in New York and online from 8 to 10 June.

At the event, Strengthening national social protection systems to adequately include people living with, at risk of, or affected by HIV to fast-track ending AIDS, speakers pointed out that it is at the intersections of multiple inequalities that the most vulnerable people lie. Compounding vulnerabilities hit the most marginalized and left behind people, and COVID-19 has brought those inequalities to the forefront.

The event highlighted promising country experiences. It showcased innovative approaches in enhancing access to social protection by people living with, at risk of and affected by HIV and brought together high-level representatives of governments, civil society, donors and academia to accelerate joint programming of HIV and social protection programmes to respond to COVID-19 and end AIDS by 2030.

The new global AIDS strategy aims to reduce the inequalities that drive the AIDS epidemic and acknowledges social protection’s central role in that. Social protection has the power to address the social and economic drivers of the HIV epidemic and to break down the barriers that people face in accessing HIV services. Social protection comprises public and private action to reduce risk, poverty and inequality, such as social safety nets, social security and labour market policies. It includes education, nutrition, housing, health and other social services.

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Caribbean partners from governments, civil society and the development community met on 7 June to discuss regional priorities for the 2021 United Nations High-Level Meeting on AIDS and its resulting political declaration. The virtual Caribbean Caucus was hosted by the Pan Caribbean Partnership against HIV/AIDS (PANCAP) and moderated by the Caribbean Community (CARICOM) Assistant Secretary-General, Douglas Slater.

The PANCAP Director, Rosmond Adams, noted that the Caribbean has made significant progress in key aspects of the HIV response. Eight countries and territories have been validated by the World Health Organization for eliminating vertical HIV and syphilis transmission. And between 2010 and 2020, AIDS-related deaths in the region fell by half (51%).

But to get on track to end AIDS by 2030, he said Caribbean countries must step up the pace around prevention, testing, treatment, care and ending stigma and discrimination. By 2020, 82% of people living with HIV in the region were diagnosed. Two thirds (67%) of all people living with HIV were on treatment and 59% were virally suppressed.

While new HIV infections have fallen by 28% since 2010, the rate of decline is too slow. Overall, members of key population communities and their partners accounted for 60% of new HIV infections in 2020. Around one third of new HIV infections were among young people aged 15–24 years.

Speaking on behalf of the Caribbean Regional Network of People Living with HIV (CRN+), Diana Weekes noted that key structural barriers continue to block access to HIV prevention, treatment and care services. These include “stigma and discrimination … lack of privacy, breach of confidentiality and limited redress” when people’s rights have been violated. She noted that no country in the region has adopted the CARICOM model antidiscrimination legislation, which was developed almost a decade ago. CRN+ called for greater emphasis on policy and legislative changes as well as community-led responses to address these structural barriers.

Ivan Cruickshank, the Executive Director of the Caribbean Vulnerable Communities Coalition, pointed to regional data that show that HIV disproportionately affects key populations, including gay men and other men who have sex with men, transgender people, sex workers and people who use drugs.

“According to the latest UNAIDS report, nations with progressive laws and policies, as well as robust and inclusive health systems, have had the best HIV outcomes. We must therefore create inclusive societies in which people are confident in their ability to seek medical treatment and exercise their social and economic rights. We must go beyond declarations, to remove laws that continue to criminalize communities and limit young people’s access to sexual and reproductive health and rights,” Mr Cruickshank said.

The Guyana Health Minister and Caribbean representative on the UNAIDS Programme Coordinating Board, Frank Anthony, reaffirmed the region’s commitment to the HIV response, saying that “governments in the region stand ready to do their part in ending AIDS by 2030.”

He pointed to longstanding challenges in the region, such as “removing the legal obstacles that foster discriminatory practices” and “prevention sustainability.” But he also emphasized the new threat posed by COVID-19, noting that “finite financial resources had to be reprogrammed to meet these urgent demands.” He called for increased vaccine equity and a review of plans to transition countries in the region away from international HIV funding.  

“We must use the platform available to us at this United Nations high-level meeting to ensure that we highlight our vulnerabilities to the HIV epidemic and the COVID-19 pandemic,” he said.

During discussions, civil society participants also emphasized the profound negative impact of COVID-19 containment measures on lives and livelihoods. They said there was an additional need for solutions to provide nutrition, mental health and financial support to people living with HIV and members of key population communities.

The Director of the UNAIDS New York Liaison Office, César Núñez, noted that in the response to both HIV and COVID-19, the role of communities is clear.

“The response must include a key role for civil society at the table when frameworks are being put together and implemented,” he said.

Mr Núñez ended by calling for CARICOM’s support in securing an ambitious, action-oriented and laser-focused political declaration.

HIV outcomes rely on far more than the availability of services or treatment.

According to the 2020 Jamaica People Living with HIV Stigma Index, more than one third (38%) of respondents delayed HIV testing due to fears about how others would respond if they received a positive diagnosis. And 30% were slow to start treatment because of concerns that people might learn about their status.

Many of those fears are founded.

Almost half of the study’s respondents (48%) had experienced stigma or discrimination related to their HIV status. Members of key population communities reported even higher rates of prejudice and worse mental health than other people living with HIV.

“More needs to be done to get those living with HIV, and communities impacted by HIV, to live in a country and society where they are accepted and appreciated. That will also make their health outcomes better,” said Jumoke Patrick, the Executive Director of the Jamaica Network of Seropositives.

To accelerate progress towards that goal, in 2020 Jamaica became one of the first countries to join the Global Partnership for Action to Eliminate all Forms of HIV-Related Stigma and Discrimination. The initiative combines the power of governments, civil society, donors, academia and the United Nations. It reaches beyond the health sector to address ignorance and bias in education, the workplace, the justice system, families and communities.

On 4 June, the Jamaica Partnership to Eliminate HIV-Related Stigma and Discrimination launched its first annual report, Enabling environment and human rights.

The State Minister in the Health and Wellness Ministry and Chair of the Partnership, Juliet Cuthbert Flynn, reiterated the government’s commitment to addressing the social and legal issues that are barriers to an effective HIV response. She called for political leadership across party lines to recognize their role in helping to create an enabling environment.

“This is an imperative as we strive to allow every individual—regardless of their occupation, socioeconomic status, sexual orientation, gender identity, age, health status, disability and other status—to enjoy their human rights,” Ms Cuthbert Flynn said.

“We strongly believe that AIDS in Jamaica is not over, but it can be,” said the UNAIDS Country Director for Jamaica, Manoela Manova,

She noted that the new UNAIDS report, Global commitments, local action, showed that while dozens of countries had achieved the 2020 targets, many, including Jamaica, are entirely off track.

“HIV remains driven by inequality. The countries with progressive laws and policies as well as strong and inclusive community and health systems have the best outcomes. New HIV infections and AIDS-related deaths reduce faster. That is what we would like to achieve for Jamaica,” Ms Manova said.

Jaevion Nelson, a UNAIDS consultant, detailed the achievements of stakeholders in the national HIV response in Jamaica. A national human rights public education campaign was led by the National Family Planning Board. Sensitization exercises were conducted with police and correctional officers, health-care workers and faith leaders and congregants. People living with HIV received legal support, with several securing resolutions such as being reinstated in their jobs and receiving settlement costs. A National Transgender Health Strategy was launched, and nongovernmental organizations collaborated to develop model antidiscrimination legislation. 

The next steps for the initiative include strengthening monitoring, evaluation and learning for its human rights agenda, increasing the engagement of legislators and creating a more sustainable framework for sensitizing health-care workers, law enforcement officers and other duty-bearers.

The UNAIDS Deputy Executive Director, Programme, Shannon Hader, delivered the feature address at the virtual event. “Societal enablers and HIV outcomes are linked,” she said. “We will only end AIDS if we strive to respect, protect and promote the rights of everyone, everywhere. It is the evidence-based thing to do.” 

At the United Nations High-Level Meeting on AIDS, which will take place from 8 to 10 June, Member States will adopt a new political declaration to bring the HIV response back on track. After the uneven progress made in the HIV response since the 2016 United Nations High-Level Meeting on Ending AIDS, this year’s high-level meeting will be the springboard for a decade of action to reduce inequalities and root out the social determinants that fuel the HIV epidemic.

In order to find out more about civil society’s aspirations and hopes for the high-level meeting and political declaration, UNAIDS talked to two civil society representatives, both of whom are living with HIV. Jacqueline Rocha Côrtes (JRC) is from the National Movement of Women Living with HIV/AIDS (MNCP/Brazil), the Latin American and the Caribbean Movement of Positive Women (MLCM+) and the National Institute of Reassigned Women (INAMUR/Brazil). Andrew Spieldenner (AS) is the Executive Director of Mpact. Both are members of the Multistakeholder Task Force to the HLM and were involved in drafting the 2021 high-level meeting civil society declaration, in which civil society organizations urge Member States to focus efforts and resources where they are most needed and to adopt a political declaration that explicitly recognizes who is most at risk of HIV and acknowledges why this is so, to commit to fully fund and support effective HIV responses and to hold Member States accountable for their actions.

What is the purpose of the civil society declaration you released ahead of the high-level meeting?

JRC: The civil society declaration has several purposes. First of all, to bring together the main inputs given by civil society globally on the desired content of the 2021 political declaration on AIDS. Secondly, the civil society declaration serves as a tool to mobilize community efforts locally and regionally and to harmonize and sharpen our positions in order to build a stronger community position on our demands worldwide.

AS: The civil society declaration released ahead of the high-level meeting is a clear statement of the values, concerns and needs of our communities. Where Member States might be more concerned with politics, civil society continues to elevate and centre those most impacted by HIV—the same populations most often marginalized by governments through punitive laws and policies. As civil society, we want to ensure that Member States understand where we stand, in the hope that they support our work and communities in the development of the political declaration.

What are the major asks from civil society to Member States?

JRC: The major asks from the civil society declaration, from my personal perspective, are to show and remind Member States how strong we are and of our ability to mobilize and guide what is needed to end AIDS. It is an opportunity to show that we, the communities, are alive and attentive, even more so during times like this, where the COVID-19 pandemic has had such a negative impact on the response to AIDS. It is also a call to international and multilateral organizations.

AS: We want Member States to recognize the disproportionate impact of HIV on sex workers, people who use drugs, transgender people and gay and bisexual men and to centre the needs of key populations in the HIV response. We want Member States to support the delivery of necessary HIV interventions, such as comprehensive sexuality education, harm reduction in all its forms and HIV prevention and treatment. We want Member States to protect sexual and reproductive health and rights. We want Member States to be flexible with the Trade-Related Aspects of Intellectual Property Rights (TRIPS) with HIV technologies and to fully fund the HIV response.

What are the expectations of communities and civil society organizations for the upcoming high-level meeting and new political declaration?

JRC: In the political declaration, we expect to see a minimum standard of progressive broad language that includes everyone in order to make it clear that, when we refer to the response to AIDS, we are referring to human rights, the flexibility of trade agreements, the financing of the AIDS response, the community-led responses, the reduction and elimination of gender-based violence. We expect the political declaration to include firm commitments to fulfil the many goals established in the 2016 political declaration and in other political declaration that have not yet been met, as well as the most recent priorities established by the UNAIDS Global AIDS Strategy 2021–2026, agreed by many countries, which calls for the elimination of inequalities to end AIDS by 2030.

We also hope that conveniently politically correct technical language won’t serve as a veil to cover particular interests, leaving aside issues such as sexual and human diversity, sexual health and reproductive rights and the reduction and gradual elimination of punitive laws that further stigmatize people and punish citizens, who are often imprisoned or killed simply because they exist as they are.

AS: As civil society and communities, we expect Member States to support the Global AIDS Strategy 2021–2026. We understand that some Member States will be against the language describing key populations, as well as against key HIV interventions, including harm reduction, comprehensive sexuality education and TRIPS flexibilities. We hope that Member States can seek compromise to embrace and support what’s necessary to move forward in the HIV response.

Some Member States are still reticent to advance the agenda when it comes to key populations, drug use and the criminalization of sex work. What would be your message to them?

JRC: My message to them is that whether they accept it or not, humanity will not be linear like some of their political and economic projects and even social projects that try to dictate the course of human lives, over which the authorities have no governability or rights. In the same way that United Nations Member States refer to national sovereignty on whether to adopt or not certain measures, people have an inalienable autonomy to decide what is best for their lives and how they want to live.

It is imperative that Member States recognize the existence and rights of key populations.

As a reassigned transsexual woman living with HIV for 27 years, I cannot help but state that if we want to end inequalities we will necessarily have to approach and embrace human diversity.

AS: After 40 years of HIV, the disproportionate burden of HIV remains on key populations, including people who use drugs, sex workers, gay and bisexual men and transgender people. We cannot end the HIV epidemic if we do not centre the needs of key populations, including the greater involvement of people living with HIV. If Member States continue to ignore our needs, marginalize our communities and legislate against us, then the HIV epidemic will continue unabated, no matter the advances in HIV technologies.

Once the political declaration has been adopted, what will be the role of civil society in making it a reality on the ground?

JRC: We will do what we have always done—we will advocate and influence politics. We will monitor and mobilize, fight, carry out community-led work and provide community responses, build and act with solidarity, respect the internal dynamics of the various sectors, including the governments, but act on our rights and demand that our governmental authorities to do their work and comply with their commitments and duties.

And we count on UNAIDS, one of our most valuable partners, and on other United Nations agencies.

AS: The global key population networks have been advocates for community-led responses and accountability mechanisms. With the support of multilateral and philanthropic funding, we will continue to support grass-roots local and regional efforts. Unfortunately, with shrinking civil society space and funding, this will be a challenge. We need multilateral and philanthropic support in order to continue this role. 

Holding her baby in her arms, Melody (Melody, pictured above, preferred to use just her first name for this story) fled her home in Harare, Zimbabwe, one night after policemen stormed in and fatally shot her husband.

“I didn’t know my husband was a criminal. One night when we were sleeping, police barged into our home and killed him,” she says.

Terrified for her own life and without any money, she sought refuge with Emma Mambo, pictured below, a peer educator and community activist in Epworth, south-east of Zimbabwe’s capital.

Ms Mambo, affectionately known as MaiTino, volunteers with Katswe Sistahood, an organization that seeks to empower young women and girls in claiming their sexual and reproductive health and rights. She works extensively with women in her community, including sex workers. She also runs a dance and drama group for adolescent girls and young women, which explores the complex issues they face through the arts.

“I don’t get paid for my work, but I love Katswe because it elevated me and made me realize I can teach and work with people. Even when I get phone calls at night for help, I don’t mind,” she says. This is despite not being formally employed and raising her daughter, Tanaka, pictured below, as a single mother.

“Some of the circumstances these women face hurt me. I even use my own money to help them even though I am struggling myself,” she continues.

After fleeing her home, Melody struggled to make ends meet for herself and her child. Soon, she went back to sex work, a life she had left behind when she got married.

Sex work for Melody and other Zimbabwean women is a difficult and dangerous industry in which to work. While gender-based violence is a global epidemic, affecting one in three women worldwide, its impacts are exacerbated for sex workers.

Zimbabwe is one of the 103 countries worldwide in which sex work is criminalized, leaving sex workers unprotected by the law and exposed to a range of human rights violations.

Studies show that sex workers often face violence from the police, clients and partners, increasing their risk of acquiring HIV. Prevalence of HIV among sex workers in Zimbabwe is exceptionally high, estimated at 42.2%. Sex workers also face stigma and discrimination or lack of privacy from health-care workers.

Says Ms Mambo, “Going to the clinic is a procedure often void of actual medical care and dignity. This is particularly true if you are a sex worker with a sexually transmitted infection. Health-care workers will spread the news.”

This can also be true of HIV treatment. Ms Mambo helped a young sex worker go for HIV testing and counselling, only to find out that she had absconded when she was supposed to collect her treatment.

“When I eventually spoke to her, she told me that the clinic has no privacy. Everyone would be able to see her get her medication. I then helped her get a transfer to collect medication elsewhere,” she says.

Working as a sex worker in Harare, Trish (Trish, pictured below, preferred to use just her first name for this story) is familiar with the dangers of the trade, including gender-based violence. Clients often misuse alcohol and become violent towards sex workers.

“When I think back to last week, I couldn’t leave my home. My eye was so swollen. You get hit to the extent that you get injured. If you report it to the police, the client can bribe his way out without the matter being even heard. You are seen as lowly and powerless because you are a sex worker,” she says.

Police also harass sex workers from doing their job, said Ms Mambo, who often gets phone calls from sex workers in jail.

“Sometimes police go into a bar and demand that everyone lies on the floor, start searching people and start beating them. If you are unlucky, they can arrest you,” she says.

Living in the reality of arrests and assault, Melody said poverty is the only reason that drove her to be a sex worker, a line of work she entered at 19 years old. Following the death of her first husband, she momentarily escaped the trade when she fell in love with a man with a formal job who could afford to look after her and her child.

However, that was short lived as her second partner was arrested for stealing from his workplace.

“I have nothing against my last partner who got arrested,” Melody says. But she has still not been able to shake off the tainted reputation she got from her first husband.

“When I am working in bars, police come and harass me because of who my first husband was,” Melody says. “The police should leave us to work freely outside of abuse. Our children need to eat and our parents need to be taken care of,” she insists.

Her personal and work experiences with men have negatively affected Melody’s perception of men. However, she says she does not fully express her pain because these are the very men who can provide her next meal.

She does not want it to be like this forever, though. “I’d be happy to get a better job that won’t expose me to danger,” she says.

Ms Mambo also dreams of a life beyond her current circumstances. “Someone offered me a piece of arable land to farm on. I am looking for fertilizers to farm potatoes because sex work and my age don’t correlate anymore,” she says.